Post by BrenK on Apr 11, 2007 18:59:45 GMT -5
What an awesome meeting! Thank you all for the information, suggestions and discussions everyone brought to the table!
We talked about:
The launch of our new MESSAGE BOARD!!
-this was brought up at our march meeting, and we do listen to what you want! From that suggestion, we are now officially launching this message board!
Potential guest speakers
-if anyone has a derm, rheum, nutritionist or holistic care professional who would like to speak to our group. Please let us know!
PPSN BBQ (please see thread)
- a fun relaxing day for all of us!
Focus group opportunity
- we will be sending the information by email, so please look out for that!
Town hall meetings (please see thread)
- As some of you may know, we have our very first Psoriasis bill in Congress!! Town hall meetings are a way for us to let our representatives know this is an important issue to us, and to ask for their support!
Psoriasis Awareness Walk
-as always Fred is completely motivating, and has us all very exciting. We will be on a conference call this Thursday and as the time goes on, we will have more information about the walk, volunteer opportunities and general updates!!
Thank you once again to those who came! Diana and I do listen, and we are here for you! Our goal this year is to bring more information to the table, more guest speakers and more social opportunities for everyone.
We talked about:
The launch of our new MESSAGE BOARD!!
-this was brought up at our march meeting, and we do listen to what you want! From that suggestion, we are now officially launching this message board!
Potential guest speakers
-if anyone has a derm, rheum, nutritionist or holistic care professional who would like to speak to our group. Please let us know!
PPSN BBQ (please see thread)
- a fun relaxing day for all of us!
Focus group opportunity
- we will be sending the information by email, so please look out for that!
Town hall meetings (please see thread)
- As some of you may know, we have our very first Psoriasis bill in Congress!! Town hall meetings are a way for us to let our representatives know this is an important issue to us, and to ask for their support!
Psoriasis Awareness Walk
-as always Fred is completely motivating, and has us all very exciting. We will be on a conference call this Thursday and as the time goes on, we will have more information about the walk, volunteer opportunities and general updates!!
Thank you once again to those who came! Diana and I do listen, and we are here for you! Our goal this year is to bring more information to the table, more guest speakers and more social opportunities for everyone.